Paralympian Karni Liddell is a champion Australian swimmer, but her race to get vaccinated against COVID-19 has been slow and frustrating.
Ms Liddell, a social worker, has a neuromuscular wasting disease that affects her lungs and heart.
She told SBS News she should have been prioritised in the first round of the rollout.
"I went online, like everybody else...and tried every which way to find somewhere to do it. I just could not figure out a way or a place for me to go to," she said.
"My GP got involved because he was so worried about me and then my lung specialist was very worried about me when covid first came to Australia."
In the end, Ms Liddell, who is now fully vaccinated, took matters into her own hands.
"I actually just rocked up a hospital without an appointment and it sounds like I am jumping the queue but as you can see I’m in an electric wheelchair and was absolutely supposed to be in that first round," she said.
In a damning draft report published on Monday, the disability royal commission says the rollout of COVID-19 vaccines to people with disabilities, and their carers, has been "seriously deficient".
The draft report makes 17 findings critical of the government's handling of the rollout, including its decision earlier this year to prioritise vaccines for aged-care residents while not informing the disability sector about it.
"People within the priority disability group did not know of the decision to de-prioritise the vaccination of people in residential disability accommodation for a period of six weeks," the draft report says.
"During this time, they proceeded on the misapprehension that the COVID-19 vaccine roll-out strategy would be implemented according to its terms."
"Not surprisingly, the failure to communicate the decision in a timely manner caused many people with disability to lose trust and confidence in the Australian Government's handling of the vaccine rollout."
Ms Liddell said there were also issues in navigating the booking system.
"I’m a social worker, that’s what we do for a living, is fill out paperwork and navigate government systems. If it was hard for me, I can only imagine how hard it would be for everybody else with any kind of intellectual disability, but also just people strapped for time," she said.