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A grandmother fights to keep her grandsons 'loud and lively'

Muscular Dystrophy

Sue Tantaro and her grandsons Source: SBS

A family in Melbourne's West is preparing to head to Italy to seek treatment for a genetic disorder that, so far, has no cure - and only limited treatment options in Australia.


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Updated

By Abby Dinham

Presented by Claudette Centeno-Calixto

Source: SBS



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A family in Melbourne's West is preparing to head to Italy to seek treatment for a genetic disorder that, so far, has no cure - and only limited treatment options in Australia.


Young cousins Anthony, Jakob and Lukas all have Duchenne muscular dystrophy.

Their grandmother, Sue Tantaro, is hoping to use her Italian heritage to get access to a new drug available only in Europe.


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