'There is such a disease, but it is no longer fatal': SMA treatment in Australia and Russia

"COD's 15th Annual Pathophysiology Panorama 2016 17" by COD Newsroom is licensed under CC BY 2.0

"COD's 15th Annual Pathophysiology Panorama 2016 17" by COD Newsroom Source: This photo is licensed under CC BY 2.0

We talked to Anna Sokolovskaya from Australia, whose child was diagnosed with SMA; to Alexandra Frank, the founder of the Russian foundation "Star on the Palm" that help children with SMA; and to Mayya Korsik, a volunteer of the foundation.



Share

Follow SBS Russian

Download our apps

Listen to our podcasts

Get the latest with our exclusive in-language podcasts on your favourite podcast apps.

Watch on SBS

Russian News

Watch now