Government adds cystic fibrosis drug for babies to PBS, slashing script costs

The federal government has added an expensive cystic fibrosis drug to the PBS to help extend the life expectancy of babies suffering from the disease.

Federal Minister for Health Greg Hunt

Federal Minister for Health Greg Hunt Source: AAP

The price of an expensive drug used to treat cystic fibrosis will be dramatically reduced for the parents of babies suffering the disease.

Federal Health Minister Greg Hunt will announce on Sunday that Kalydeco, which costs up to $380,000, will be listed on the Pharmaceutical Benefits Scheme for babies aged 12 to 24 months.

"Families will be able to access this medicine and will pay up to $40.30 per script, or $6.50 with a concession card," Mr Hunt told the Sunday Tasmanian.

Early intervention with the drug raises the life expectancy for cystic fibrosis sufferers.

At present about 280 Australians aged two upwards use Kalydeco.

"For these babies to now have access to it from the age of 12 months old is just remarkable," Cystic Fibrosis Australia chief executive Nettie Burke said, calling it life-changing.

"Their young lungs will be so much more healthy as they go through their life.

"They'll have a longer life and a better life."


Share
1 min read

Published

Updated


Tags

Share this with family and friends


Get SBS News daily and direct to your Inbox

Sign up now for the latest news from Australia and around the world direct to your inbox.

By subscribing, you agree to SBS’s terms of service and privacy policy including receiving email updates from SBS.

Download our apps
SBS News
SBS Audio
SBS On Demand

Listen to our podcasts
An overview of the day's top stories from SBS News
Interviews and feature reports from SBS News
Your daily ten minute finance and business news wrap with SBS Finance Editor Ricardo Gonçalves.
A daily five minute news wrap for English learners and people with disability
Get the latest with our News podcasts on your favourite podcast apps.

Watch on SBS
SBS World News

SBS World News

Take a global view with Australia's most comprehensive world news service
Watch the latest news videos from Australia and across the world