A pure moment of transformation for Patrick: Kiki’s Blog

Everyone has a right to be heard, blogs Kiki King on how sign language is finally allowing Uganda’s deaf to speak.

15 and Learning to Speak

Source: SBS

When we set out for Uganda to make 15 and Learning to Speak, neither director Daniel Bogado or I could have ever imagined we would witness such a pure moment of sudden realisation and transformation for Patrick, as he communicates using sign language for the first time.

He and his father live in Agago in northern Uganda, an area previously ravaged by the Lord's Resistance Army. The memory of war hangs heavy here; walls pockmarked by bullets, families disjointed with too many fathers, sons, mothers and sisters gone.

Patrick was born in a camp for internally displaced people. Here, being deaf is another kind of incarceration. With no deaf schools in the entire province, Patrick missed out on any kind of education and could only communicate with his father using very basic gestures.
Kiki with Patrick before his first sign language lesson, when he was silent and withdrawn.
Kiki with Patrick before his first sign language lesson, when he was silent and withdrawn. Source: SBS
We filmed Patrick attend his first ever sign language class, and witnessed him realising he is not alone - and that there is a language for people like him.

He is now being taught by Raymond Okkelo, a 23-year-old who only learnt sign language six months before on an intensive program created by the Uganda National Association of the Deaf.

Those first students have now all returned to their villages to teach others. Raymond's class started early - people just started turning up - and it went on long after it was scheduled to end. Family members joined in and there were even a few nurses and a police officer in the class, all determined to learn to communicate with deaf people in their community.

We also spent a lot of time filming at the Kinyinya Deaf Unit primary school in southern Uganda. Here, I asked students what their lives were like before they could communicate using sign language.

"Before, I was alone and scared," said Jackline Mukamungu, a 16-year-old who has spent most of her life living in a refugee camp near the border with Rwanda. "Now, I feel free, I am happy. I am proud."
Kik with some of the pupils at the Kinyinya deaf school in Kygegwa.
Kik with some of the pupils at the Kinyinya deaf school in Kygegwa. Source: SBS
Her description of life 'before' sign language and 'after' was repeated to us time and again by her school friends. Although they now communicate fluently in sign language, their descriptions of what they felt before they could sign were limited: they all described their old existence as unhappy.

This is the reality for most deaf people in sub-Saharan Africa, where most never learn sign language. In Uganda, there is roughly double the proportion of deaf people as there is in Australia because many become deaf as a result of diseases like malaria, measles, mumps, meningitis or being born to mothers who contracted rubella during pregnancy.

I could not stop thinking how in the rich west, these diseases are easily preventable with routine vaccinations. I also could not stop thinking about the incredible, moving videos we now regularly see in the wealthy parts of the world of people being fitted with cochlear implants and hearing sound for the first time.

Mistakenly, these videos make many think that deafness is on the wane. Far from it. Cochlear implants are not appropriate for every deaf person for whom they are available; for many they just don't work. And considering they can cost around $80,000 to fit per implant, they are absolutely unheard of in places like rural Uganda.

Cochlear implants are controversial in the deaf community, I have learned since starting work on this documentary. Many quite rightfully reject the idea that their deafness is a problem which needs rectifying through surgery when sign language provides a full and rich linguistic culture for all those who use it.
Kik watches as Raymond Okkelo's class learns how to speak using sign language.
Kik watches as Raymond Okkelo's class learns how to speak using sign language. Source: SBS
Meeting deaf people in Uganda working hard to help others gave me a privileged glimpse of this culture for the first time.

Everyone has the right to be able to communicate, to have a voice and to be heard. For millions of people like Patrick, the answer lies in sign language.



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4 min read

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By Kiki King


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