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'You always feel a bit guilty, leaving him behind'

When caring for a family member with a severe disability, it can be difficult to decide whether to help care for them in the family home or place them in supported accommodation. Jessica Lim's brother Jason, who has Pelizaeus-Merzbacher disease, is in the latter - with both positive and negative affects on the family.

Jessica Lim and her brother, Jason

Jessica Lim and her brother, Jason Source: Insight

Watch the full episode of Insight's look at what it's like to grow up with a sibling with a disability, here: 

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Insight is Australia's leading forum for debate and powerful first-person stories offering a unique perspective on the way we live. Read more about Insight

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