Northern Territory mum Chloe describes her 15-month-old son, Jett as a "super cheeky" fisherman-in-training, who loves playing with the family dog, Ruby.
In many ways he is like any other toddler, having started to talk and babbling non stop.
But his parents are fearful about his future.
Jett, who is Nurungga, Jawoyn and Dharmbul, has recently been diagnosed with Wiskott–Aldrich Syndrome, a life threatening disease that affects the immune system and the way blood clots in the body.
"There are higher risks of cancers, higher risks of dying from internal bleeding, higher risks from dying from infection, it's an incredibly dangerous life that we're living in," Chloe told NITV News.
Chloe and her partner, Jett's dad Nathan, have been told a stem cell transplant could cure the syndrome - the only problem is finding a genetic match can be challenging.
The couple have turned to social media to share Jett's story and encourage more people, including Indigenous people, to enrol as stem cell donors.
According to the United States National Marrow Donor Program, people with the same ethnicity have the best chance of being compatible matches.
"All we know is that we just want to give Jett the best chance at finding that donor, and we know that Aboriginal people are underrepresented on the registry," Chloe said.
So the couple have asked people of Aboriginal, English and Australian backgrounds, all of which Jett has, to enrol to be a stem cell donor online.
Within just 48 hours of putting a call out for donors online, about 500 people signed up to be donors in Jett's name.
Chloe said what was great was that all donors are cross referenced against not only Jett's DNA, but against others waiting for their own matches.
"We have another girl on there that's been waiting well over six months for hers, and she has Aboriginal heritage too," she said.
Chloe said while it was a frustrating wait while the search for a match happened, she felt bouyed by the support her family had been shown.
"We've had people from all over Australia, Wilcannia, Broome everybody has come together for Jett and registered for him just to give him a chance at growing up, and I don't have words for it," she said.
Chloe, who has already learnt a lot about stem cells herself, has been sharing information with others and was happy to become an unofficial champion for stell cell donation.
Matches are rare; they are based on genetic compatibility.
Potential donors provide some of their details online and are sent a swab kit to complete and send back.
Donor details are added to the register and alerted if they are identified as a match to anyone needing stem cells around the world.
For now, Chloe has had to take Jett out of daycare, in an effort to protect his fragile immune system, which also means she has had to leave her job.
While she and Nathan do not know how long it could take to find a donor match, they are making the most of family time together - heading bush when Jett's well enough, and otherwise spenidng time at home watching Jett playing with his favourite magnetic fishing rod.
